This blog is my attempt to do four things:
– understand and articulate my journey with chordoma;
– share my progress with my friends and family;
– create greater awareness of chordoma;
– create a network of support for those living with chordoma, and their family and friends.
I hope that you enjoy it and that it helps you in some way.
Chordoma is a rare cancer of the spine and skull. My experience with this poorly understood cancer was through the discovery of a tumor on my lumbar vertebrae (L5) that was removed in July 2014 by an incredibly gifted health care team in Vancouver. I live in a beautiful city in the interior of British Columbia, Canada, nestled on a lake in the middle of orchards, vineyards and wineries. I love Kelowna, however, it doesn’t offer all of the specialized care that I needed, so in addition to traveling to Vancouver for my surgery, I spent the fall of 2014 in Seattle, undergoing radiation therapy at the Seattle Cancer Care Alliance Proton Therapy Center and at the University of Washington Medical Center. I returned to Kelowna in January 2015 and am recovering and enjoying my new life.
Please contact me if there are topics you would like me to write about, if you are looking for additional information on chordoma (I don’t have all the answers but I would like this blog to become a forum for information on the disease), or if you would just like to comment on what I have written so far.