I’m on the home stretch! Only 17 treatments left to go. Olivia arrived on Thursday night and came with me to UWMC for radiation session #24. Four more weeks and I get to home with these two:
This phase is going well now. The treatments are easy and efficient, and I think I know what to expect in terms of side effects. Other than fatigue, my health has not interfered with our weekend plans. I did go to bed at 330 on Friday afternoon and slept until 830 Saturday morning; a pretty exciting Friday night in Seattle! Olivia had not been to Capitol Hill so we walked up yesterday and saw the new Starbucks that opened on Friday (yes, Seattle needs another Starbucks). When Olivia and Stella were last here they saw the first Starbucks; the newest one opened on Friday and has a bouncer to manage the line.
We passed and had coffee at the lovely little bistro next door and watched people waiting in the rain. After a nap we went for a strenuous walk to the top of Queen Anne for dinner. Along the way down we passed this great little “library” at the end of a driveway on Galer Street.
I was exhausted and slept well despite the nerve pain in my foot. The pain has become much worse this week and is interfering with my sleep, however I think the walking helps me to manage the pain.
I went into my appointment with Dr. Tseng on Friday feeling like I am an imposter or a “cancer fraud”. I am having some issues as a result of the radiation and they will likely get more severe, but I am almost always the healthiest person in the waiting room or at SCCA House. I have to remind myself often that I have cancer, that I have just had significant surgery to remove a chordoma from my spine, and that I am in radiation. We discussed nerve pain and ways to deal with it (agreeing that the oxycodone and gabapentin I am on are the best option for now) and talked about what the last few weeks of treatment might bring. I might not be out of the woods yet, but I definitely think that this last month is going to be okay. I have great care, tremendous support and I know I can do this.